So What We Have Autism

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I finally gave in and got this safety bed for my autistic son 🥹💙He’s 7 years old, around 60 lbs and very active… and I w...
08/06/2026

I finally gave in and got this safety bed for my autistic son 🥹💙
He’s 7 years old, around 60 lbs and very active… and I was honestly worried about his safety at night.
But this bed changed everything it’s strong, fully enclosed, easy to move with wheels, and holds up to around 150 lbs without any issue.
The moment I put him in, he felt secure… no climbing, no falls, just calm 🥺
For the first time, I slept without fear.
It may look simple, but for us… it means everything 💙

My 15 year old autistic son spent his entire afternoon making “movie credits” across the living room floor using clay le...
08/06/2026

My 15 year old autistic son spent his entire afternoon making “movie credits” across the living room floor using clay letters, sticky notes, and random craft pieces he found around the house. 🥹 He told me every “movie” needed names, producers, music, and even fake sponsors just like real films. Most people would probably walk in and see a giant mess… but I saw creativity, focus, imagination, and a mind that never stops building beautiful ideas. Autism may make his world different, but watching how his brain works honestly amazes me every single day. 💙

Things autism parents say that make people uncomfortable:đź’Żđź’Ż
07/06/2026

Things autism parents say that make people uncomfortable:đź’Żđź’Ż

07/06/2026

Things autism parents say that make people uncomfortable:

-They can decide when it's time to leave.
-If they can't go to school, they won't.
-They can eat what they want.
-Co-sleeping doesn't have an age limit.
-Screens stay if they help them regulate.
-They don't have to push through.
-We'll just cancel last minute.
-They don't have to say hello.
-We don't chase milestones.
-We follow their lead.

07/06/2026

Any advice for my newly diagnosed 8yo daughter? (IEP meeting, behaviors)

Hello! My daughter is almost 8yo. She was finally diagnosed as ASD and general anxiety disorder in December 2025, but I’ve always known in my gut. She was diagnosed as “on the cusp” at her neuropsychiatric appointments at ages 5 and 6, but received an anxiety diagnosis at age 3. She was asked to leave her preschool at age 3 due to severe separation anxiety and meltdowns, and we were referred to child find. Through child find, she was diagnosed with anxiety and speech delay. At this point, I suspected Autism, as there were so many signs (sensory issues, stimming, etc.). She attended 2 years of preschool through child find, and then in first grade I was informed that her IEP was being removed because she “aged out” and was doing much better. Uhhhh…. Nope! I fought to keep it but they refused. And everything went downhill.

The thing is - my daughter is academically brilliant, so the school fought me on an IEP. But socially and emotionally, she can present as a toddler, if that makes sense. She’s top of her class and has an IQ in the “genius” range, yet will cover her ears, scream and rock if it’s too loud or if too many people are in one room. She leaves class to sit in the nurses office at least one daily, and after an incident a couple weeks ago where she ran off campus, the school is “finally” hearing me out. Sometimes her meltdowns are so huge, no one can calm her down.

All that to say - we have her IEP meeting scheduled for April 13. I have an advocate who will be attending the meeting virtually with us. My questions are as follows:

What things should I request as part of the IEP? I have no idea what to expect. When she had one in preschool, it was a standard one that she aged out of, and I hear this is much different.

Her teacher has asked for suggestions on methods to calm my daughter when she’s having an “episode”, and I’m at a loss. She’s currently on 0.25mg of Risperidone 1x daily (please no judgement- we are a scrawny family so she’s experienced no weight gain and it’s really helped her) and that’s reduced her “episodes” from daily to about once every 7-10 days. So it’s helped tremendously, but still at a loss of what to do or suggest for these moments. We don’t get them at home really anymore, likely because her social anxiety is what triggers the outbursts.

Yes yes‼️💯💯
07/06/2026

Yes yes‼️💯💯

WEIRD THINGS I DO THAT TURNED OUT TO BE AUTISMđź’Żđź’Ż
07/06/2026

WEIRD THINGS I DO THAT TURNED OUT TO BE AUTISMđź’Żđź’Ż

07/06/2026

WEIRD THINGS I DO THAT TURNED OUT TO BE AUTISM
- I used to hide a lot in my wardrobe when I had meltdowns as a child
- I find it incredibly soothing a and regulating to look for details and patterns in my environment
- I always thought I was amazing at reading people until I realised I was reading them wrong
- I'm obsessed with research, evidence base and deep dives. If I don't have the answer to something 'll make sure I'll search until I find the correct one
-I often get my tone and volume wrong and it frustrates me like nothing else - it's led to many misunderstandings and arguments throughout my life
- I tend to talk too much and have to consciously make an effort to remember to let other people talk too and to ask counter questions

07/06/2026

Don't become friends or partners with someone who you know is Neurodivergent, Autistic, Bi-Polar, has severe anxiety, ADHD, and anything else, if you cannot accept it.
Telling someone who suffers from a mental disorder that its an "excuse" for their reactions or certain behaviors is absolutely not ok.
Our brains are wired differently, there are things that we cannot control 100%
If you're going to try and get close and create a relationship of any sort, then you need to understand these things and decide if that's going to be a good fit in your life
Instead of tearing someone down later on because you thought you could "change" them, or it's not actually "that serious"

THINGS THAT AREN'T THE VIBE IF YOU'RE AUTISTICTđź’Żđź’Ż
07/06/2026

THINGS THAT AREN'T THE VIBE IF YOU'RE AUTISTICTđź’Żđź’Ż

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