03/20/2025
Everyone has noticed we have been changing our profile pics and cover photos to Em Tuff and pics of her.
Here is a post from her mommy Lexie Drevant that’s explains why.
“ I am going to try and keep this short but that will be very hard specially when it comes to my little girl!! The reason I'm deciding to share this is because Miss Em has a world of people who love her more then ever and it's very hard for me to get back to everyone with the news we have gotten again!
Emberlynn Byer-Drevant was born on November 2nd, 2020.
Those who know her, know she is the sweetest, most caring, fun-loving little farm kid. She's the best big sister to her brother Raymond (Bobo), her new baby brother Branson (CoCo) and her other siblings as well. She is also obsessed with cows, horses and her chickens. She loves swimming, soccer, dance and many more activities!!
At her 2 year checkup, the doctor noticed a heart murmur and she was referred to a cardiologist at the Stollery. She has seen 2 specialists and has been diagnosed with Subaortic Stenosis, a condition where there is a blockage or narrowing at the outlet of the left ventricle of the heart. This condition makes it hard for the left ventricle to pump blood to the rest of the body. The specialists have decided that she needs surgery to repair the ventricle in her heart. Around October 20th 2023 we received a phone call from the Stollery telling us that Emberlynn's open heart surgery is booked for this Monday, October 23rd 2023! Em went for surgery and did amazing.
Saying kids are resilient is an understatement when it came to her recovery! After her 6 week check up we were told she looks amazing and we don't need to come back for a year!
November 27th 2024 Em had her one year appointment... and unfortunately we didn't get the best news and results. We were told that the blockage is back and the doctor couldn't believe it because normally if it ever comes back it's normally not for multiple years. But sadly Em's was back. We discussed that it wasn't 100% enough to rush her for another surgery and they wanted to see us back every four months to monitor it. To continue to give her little body a break from her surgery she had just a year ago.
March 12th 2025 we were seen again for her four month check.... And again did not get great results.. we were now told that the blockage of the valve has caused a leak in her aorta. It is still at a stage where they can go in and fix the blockage as well as repair the leak. But this does mean another open heart surgery asap because if we wait and the leak increases it won't be something they can fix. Tuesday March 18th 2025 her doctor called us and said he has talked to her surgeon and they both have agreed this surgery needs to be done asap she has been put onto something called the priority 1 list which means she will be going for surgery within the month. Em has her dental appointment this week and then early next week we will be getting a call for more surgery details.
We would all like to say thank you for all the love and support we have and also a big thank you to how amazing the stollery is...We will continue to keep everyone updated on an exact date and details!
We wannna thank all you for your continued prayers and kind words. Miss Em has told me it’s ok nana I’m Em tuff and I’ll get through this! So with her being so strong we will be as well! ❤️❤️”
