21/08/2026
Some progress is being made on my list, but not much. 🙄. Loft maybe 50% clear so the boys are on tip run today, Aoife is on her never ending quest to tidy her bedroom and Maeb, being a bit of a medically complex madam has her regular monitoring appointment at the hospital. I’m going equipped with
* Peppa Pig plasters (bog standard NHS issue will not pass muster with her).
* Boo as backup (for me!). As Maeble’s built in bestie she is always good at trying to dissolve any situation with humour and on blood days we never know which Maeble will be in the room. Compliant & charming or feisty and fearsome. 🫣
* Cake for the Paeds Team. Both as a thank you and sometimes as a necessary apology for any temporary hearing damage sustained due to the volume of screams (usually before a needle has actually gone in).
Much of life during Maeb’s first year was spent on Puffin Ward with the occasional trip to other hospitals for tests and procedures and it was an incredibly stressful and at times traumatic period while we were trying to get a handle on her symptoms and get a diagnosis and treatment plan. We literally spent the Summer with hospital every day so to baking for the staff when I got home helped to keep some sense of normalcy for me when there was not much I could do to say thank you to the people trying to make our poorly baby better. And who needs sleep when you’ve got a newborn anyway!
Hence cake for Hospital visits is our norm and I think a small trade off for the care Maeb always receives. Thankfully, with the help of meds and a whole village of different consultants, medical professionals and therapists everything is manageable (but busy) and she really is a trooper when being poked and prodded on the regular.
There is always a post appointment treat though. Not sure what today is likely to cost me…😬
